Speaking Engagements
Description of Talk
The doctor and patient story took place after the conclusion of a larger morning meeting/conference that neither Dr. Cavanagh nor I participated in. The doctor presented an enthusiastic, amazingly clear, and concise overview of SCD, new patient care plans, drug therapies, and protocols that were revolutionary in nature and, if implemented nationally, could dramatically improve patient care and improve the lives of patients nationally.
In my presentation I discussed how I've remained crisis- and hospitalization-free for over 10 years and how my path towards wellness was born out of frustration with inconsistent and sometimes inhumane care received in emergency rooms.
Patients to quickly return to their lives and how a horrible ED visit can result in an unwarranted, long, and exponentially expensive hospitalization.
The difference is a quick transition from the waiting room to the ED bed, the quick and adequate administering of pain meds, and kind and courteous care.
I discuss my work with patient groups and my attempts to teach patients how to navigate care and cultivate better patient-doctor ED physician relationships.
I also discussed my concerns for the thousands of patients who have given up on seeking care in emergency departments and, as a result, are risking their lives, suffering in silence, and unable to live productive lives.
This presentation took place after a larger board meeting of emergency room physicians with a modest-sized audience in a historic and beautiful setting.
The physician presented a wonderful overview of SCD that included many of the new ideas, practices, and procedures that will improve long-term and overall care for patients and for those suffering from painful crises.
The patient's story included background on my wellness journey, experiences regarding inconsistent care, and my experiences.
Webinars
Super Bowl MVP Santonio Holmes and Sickle Cell patient advocate Adrian Williams present part one in a Sickle Cell series educating parents on how to deal with a child's diagnosis.
Podcasts
“Emotional Intelligence” with Gerard Pappa:
The Grapevine Health Podcast - Life With Sickle Cell Disease
Dr. Lisa Fitzpatrick sits down with Adrian Williams, a community health activist. Williams talks about his struggles with sickle cell disease throughout his life and how he has managed to overcome the disease. He also talks about issues that people with sickle cell disease face when attempting to receive healthcare. Williams offers valuable insight for healthcare professionals dealing in patient care and gives ways to better health practices.
Publications
April 2021
Awards
and Recognition
Fredericksburg Sickle Cell Association Chapter
FDA
Articles
Article just published on Blackdoctor.org by Adrian Williams
https://blackdoctor.org/embracing-the-new-normal-with-sickle-cell-disease/
Clinical Studies
February 2020
Institute: National Heart, Lung, and Blood Institute
Study Number: 18-H-0146
Principal Investigator: Swee Lay Thein, M.D.
Study Title: Genotype-Phenotype Correlation of PKLR Variants with Pyruvate Kinase, 2,3-Diphosphoglycerate, and Adenosine Triphosphate Activities in Red Blood Cells of Patients with Sickle Cell Disease.
Institute: National Heart, Lung, and Blood Institute
Study Number: 04-H-0161
Principal Investigator: Swee Lay Thein, M.D.
Study Title: Studies of the Natural History of Sickle Cell Disease
Institute/Center: National Heart, Lung, and Blood Institute
Principal Investigator: Emily Limerick, M.D.
Study Number: 19-H-0100
Study Title: Best Noninvasive Predictor of Renal Function in Assessing Adult Sickle Nephropathy
December 2020
Principal Investigator: Arun Shet, M.D.
Study Title: Venous Thrombosis Biomarkers in Sickle Cell Disease and Sickle Cell Trait
Study Site: National Heart, Lung, and Blood Institute
Principal Investigator: Arun Shet, MD, PhD
Study Title: Effects of Fixed-Dose Flavonoid Isoquercetin on Thrombo-inflammatory biomarkers in subjects with stable Sickle Cell Disease.
Study Site: NIH Clinical Trial Center
Film Project
Children’s National, Dr. Meyers, Washington, DC
“What is Sickle Cell?”
Shot at Children's National Medical Centre in Washington, D.C., afwcreative attempts to tell the compelling story of sickle cell patients and their families.
Abstract
Annual CMS Conference: “Big Idea”
Publication
October 2020
ANAL Emergency Medicine
“The real cost of Emergency. Room visit regarding these traumatic events.”